Last Wednesday, we took in an elderly family member who was diagnosed with pancreatic cancer, and back in January was given a prognosis of 6-7 months to live. In other words, this person is considered terminally ill.
I don’t mind at all taking this person into our home, and I want to help. I’m not a qualified caregiver nor am I a professional nurse, but I am the most logical person to help out. My schedule is quite flexible during the day and when I work it’s at night when other family members can tend to this person.
Lately, the local music scene has been slow. Unfortunately, entertainment is the first to go whenever there is an impending recession ahead. I’m working but it’s not enough, because there aren’t enough corporate and private gigs right now. January through March has been slow, but I can see that things are picking up heading toward the Summer months.
So, logically, I’m more available to take care of this person, at least with more dedication until things start picking up for me musically. One of the bands I work with is planning to go into the studio to work on another album, but that too will always be at night. It’s always best to record in the studio at night anyway.
Right now, we’re giving two 12 hour doses of Morphine; once in the morning and again in the evening. And a 4 hour fast acting dose as needed. This morning he was experiencing some back pain, so I gave an additional fast acting dose around 9:30am.
He had his first session of chemotherapy last Wednesday before coming to our house. And he’s due for another session this Wednesday. When he first came to our house he was quite restless, quite disoriented because of the drugs and had lots of energy. He couldn’t sleep and if he did… very little. Of course, this caused my wife and I to lose a lot of sleep having to look after him, even in the middle of the night. But after about 36 hours he’d settled down to his usual self prior to the chemotherapy.
Also, once the chemotherapy had worn out he was very weak with little mobility. Going to the bathroom was a struggle and at times he basically needed to be carried into his bed. This was around Thursday and Friday. And, he slept most of the time, only to wake up to go to the bathroom.
By Saturday, his strength was coming back to him and he actually wanted to go outside into the garden. We ate outside in the patio; oatmeal with boiled egg, oranges slices, warm milk. After breakfast he wanted to sit in a chair facing the morning sun. I think getting that sunshine was really good for him. Later in the afternoon he would go out again into the garden. He was actually quite coherent and remarked at how nice the garden was and pointed out that I needed to clean and polish my marble table in the patio area.
Sometime in the afternoon, he rested in our living room, and I practiced some piano. I firmly believe that Music is good therapy, so I played some nice “standards”.
By Easter Sunday he was moving around more, going into the garden and patio area several times, to eat a meal and to take in the nice warm sunshine. At one point he actually sunbathed on a garden cushion on the grass, but after he was done he needed help getting up.
He likes to watch CNN and other news channels, so he has been quite alert enough to watch TV. And we also watched some movies on DVD related to the Easter weekend… The Ten Commandments, Ben Hur… and on cable last night we watched a little bit of The Sound of Music.
This morning I tried giving him some watermelon juice I made in the blender. He only took a couple of sips. He didn’t eat much this morning, even though I made him some oatmeal with a boiled egg, some orange and watermelon slices.
While he was reading the newspaper this morning out in the garden, he pointed out to me a small article about a breakout of salmonella in melons somewhere in Honduras or Nicaragua. So, maybe he was relectant to drink the watermelon juice.
Later while he was watching CNN, the headline news did a story on the Salmonella outbreak. And I mentioned that the article in the newspaper was this teeny little article somewhere on the 15th page… he and I started laughing pretty hysterically about that… and he seemed to roll over with laughter. It was quite a moment.
But he still sleeps for a good part of the day, so while he sleeps I try to work on the computer, do a session of yoga, or practice on the piano. In both, I am still close by. And I can usually hear when he calls for help.
I will try to write more about my thoughts and experiences…